Ten days ago, our pediatrician told us that our little girl, Moy Moy, aged ten, probably has only a few months left to live. We have always known her life would be short, but hearing it put in terms of months left me feeling desperate for air. In these gray nightmarish days, I have to consciously fight the panic that keeps overwhelming me: Driving, I find myself suddenly gripping the wheel so tightly it hurts, stunned once again by the...
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